California Heart Connection
A support and information network for those with congenital heart defects
The Congenital Heart Surgeons' Society (CHSS) is a group of 70 pediatric heart surgeons from around the world who meet once a year to discuss ways of improving surgical procedures. To participate in their studies to help improve surgical techniques, ask your surgeon if he or she is a member of the CHSS or see their website to view a list of members.
http://www.megspace.com/family/angelzachary/page0011.html
If you'd like to raise funds for CHD research, you can do so through an endowment set up by the parent of a child who lost his battle with a heart defect. For more information, contact the Zachary Brooks Endowment, c/o The American Heart Association, 3940 Peninsular Dr., Suite 180, Grand Rapids, MI 49546 or call 800-677-5481 ext. 223.
Dr. Paul Grossfeld, pediatric cardiologist, is researching genetic causes of Hypoplastic Left Heart Syndrome (HLHS.) A presentation of his study is available by videotape. If you would like a copy of the videotape, please send a check for $15 and a note requesting the video to:
California Heart Connection
PO Box 50063
Irvine, CA 92619-0063
