California Heart Connection is a 501(c)(3) nonprofit organization founded by parents of children with heart defects. The organization is run solely by volunteers, and is made possible only through donations.
We are committed to building a community of friends and families who are affected by congenital heart defects (CHDs), working closely with medical practitioners, and educating the general public.
Copyright 2002-2017 California Heart Connection. All rights reserved.
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Supporting those with heart defects
What We Do
Families and Individuals
We provide support, information and resources to families with children with congenital heart defects and adults with CHDs. We know there is no substitute to talking with others who face similar circumstances. Connecting with others allows us all to exchange information, share emotional support, and know that we are not alone. We provide:
Online support group so you can meet others
Events such as our annual picnic
Handouts/Forms - to help facilitate communication with physicians and school administrators
We are committed to working with the medical community to share up-to-date and accurate information about congenital heart defects, as well as provide information and resources for their patients. We have conducted research, worked with physicians to publish the outcomes, and written several articles to help physician communicate better with patients. It is our belief that parent need the most accurate and up-to-date information to make informed decisions for their child.
Handouts/Forms - to help with patient/parent compliance and understanding of instructions.
We work to educate the public about congenital heart defects to promote early detection and create awareness of new treatments available. See our news page for newspaper articles written about California Heart Connection.
Founders Debbie Hilton Kamm (left) and Karin Yospe with Braedon (HLHS, 3 open-heart surgeries) and Rebekah (cc-TGA, VSD, dextrocardia) - the inspirations for California Heart Connection.