The articles and abstracts listed are based upon a nationwide survey of parents of children with congenital heart disease. For background information, and how these studies can help improve communication with physicians and parents, please see our background information page.
Note: p values less than .05 are considered "statistically significant." The lower the p value, the less likely that the results were from chance. A p value of .001 means that the probability that the results were from chance are 1 in 1000.
Published Text Book Chapter:
In 2014, Debbie was asked to co-author a book chapter outlining how parents get information on their child's heart condition and surgeries. In the U.S., data regarding pediatric heart surgeries is hard to come by, as there is no mandated outcomes reporting as there is for adult (acquired heart disease) surgeries.Co-authored with Helen Haskell, founder of Mothers Against Medical Error, this chapter outlines the difficulties parents have in finding objective, and accurate information regarding life-saving heart surgeries for their children.