The articles and abstracts listed are based upon a nationwide survey of parents of children with congenital heart disease. For background information, and how these studies can help improve communication with physicians and parents, please see our background information page.
Note: p values less than .05 are considered "statistically significant." The lower the p value, the less likely that the results were from chance. A p value of .001 means that the probability that the results were from chance are 1 in 1000.
Optimising Prenatal Support of the Mother and Family
May 2019, 4th Edition of Anderson’s Pediatric Cardiology; Editors: Gil Wernovsky & James S. Tweddell & Kumar Krishna & Kathleen A. Mussato & Andrew Redington. Chapter co-authors Angela McBrien, Lisa K Hornberger and Debbie Hilton-Kamm
This chapter provides important information for physicians and other medical personnel when providing care to mothers expecting a child with a congenital heart defect. It provides insight and practical advice on how practitioners can more effectively communicate with, and provide care for parents during this extremely stressful time. For more information, see the publisher website.
Published book chapter:
Communication Chaos: How Incomplete and Conflicting Information Prevents Improved Outcomes for Patients with Pediatric and Congenital Cardiac Disease (and What We Can Do About It.)
In 2014, Debbie was asked to co-author a book chapter outlining how parents get information on their child's heart condition and surgeries. In the U.S., data regarding pediatric heart surgeries is hard to come by, as there is no mandated outcomes reporting as there is for adult (acquired heart disease) surgeries.Co-authored with Helen Haskell, founder of Mothers Against Medical Error, this chapter outlines the difficulties parents have in finding objective, and accurate information regarding life-saving heart surgeries for their children.